I know I am slow getting this posted because Ryan went to the doctor last Wednesday in Birmingham for his 3 month checkup. I have to tell you that the nurse who assists his doctor is a total idiot. She never returns his calls and trying to get a prescription from her is next to impossible. He went to his local Doctor here the week before and she wanted him to have a CT scan of the chest and abdomen because she felt enlarged lymphnodes in the abdomen. They couldn't get the scan done in time before his doctor appt in B'ham. However, Ryan called the nurse in B'ham to have her change the CT scan from just the chest to include both. But believe it or not she never called him back to confirm. His doctor down here had to make sure this was done properly how wrong is that.
Anyway that is all beside the point he had the complete CT scan and breathing test to make sure the Sarc had not entered his lungs. They also did blood work, but we have to assume there is nothing to be alarmed over since the idiot nurse has not called us. Well let's just hope it's not life threatening or anything because we may find out to late since she can't do her job. After the CT scan the Radiologist said the granulomas had enlarged, but the doctor said they had not. So who do you believe? The doctor has decided they are the same size and are no longer growing after coming off Prednisone, he has also decided not to put him on Methotrexate which is a great thing since we want to have kids. The doctor also felt he was showing signs of going into remission. He doesn't want to see him again for 6 months and at that time if they haven't enlarged anymore he will consider that remission.... Okay let me get this right remission in his case may mean that they may still be there, but not bigger? It doesn't mean that they will have disappeared? Apparently not remission for him would mean that they are not bigger and they have not moved nor multiplied. But they can remain the same size they are forever!!!! What???? So this may mean he will be in pain forever, well let's hope not. I guess we will have to wait and see in the meantime he continues to take pain medication, but nothing to reduce the size of the granulomas, which I don't think there is anything for that just yet.
Thursday, June 12, 2008
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